See the Light

Ive come to a conclusion early this morning i want to do some painting.. pretty random even for my standards, I was going to decorate the kitchen, but I'm being pulled more into need to draw and paint direction with people.. I used to love doing portraits when i was younger.

The last 6 weeks have been much better, Ive had no more problems health wise, except for the fact i don't like how i feel at the moment.. Sluggish. That I'm going to start working on today and try to slowly build myself back up again strength wise. I haven't been riding for 2 months and miss it greatly, its the same with salsa, a couple of lessons where my fella took me gingerly. I'm feeling pretty well now so want to reignite a few sparks my health put a damper on.. My things i couldn't do anymore but want to start again..

I'm beginning to believe my fellas theory of stopping smoking could have done this to me.. I did smoke pretty heavy, I'll admit that now, the shock of not smoking could have indeed caused whats happened.. I don't regret it though, I'm glad i stopped. I feel so much better in other ways.
I brought my fella a home brew kit, when he was shut indoors looking after me and positive things have come from this spell in our lives.. One being hes bloody good at making wine now! I've become a dab hand at jams, bread and cooking in general but using only what i grow in my garden to cook with.. Its a challenge and brings such a feel good factor when you get to eat and drink what you've created.....

I never have been a wine drinker which is a shame as there's nothing my fella likes better than cooking a lovely meal and sharing a bottle, so I'm now in training to learn to appreciate its taste and share a bottle over dinner.. after all hes made it so its the least i can do.. We gave my sister a bottle yesterday as she turned up with a beautiful set of copper frying pans for me to swap for jam! they have been hanging in her kitchen unused for years so she brought then to what she called a good home! She phoned up last night pretty late with my mum telling me my fella has hidden talents.. as his wine was bloody amazing stuff..lol

Ive got this huge urge to create stuff, read, paint and go canoeing so the next month along with riding and salsa I'm hoping to do just that.

The dongle (that's what i call it) that's implanted into my chest, reminds me every morning that you really do need to make the most of every day you get. I was guilty of taking things for granted as much as the next man and thankfully have seen the light..

I've even managed to talk my fella into hiring a canoe with me and seeing how many ducks we can scare the crap out of.....

My mum is trying to rebuild her life and I'm the first person up, telling her she needs to do this, watching her get knocked back again yesterday reminds me just how selfish some people can be, but its not about those people... its all about us and what good things we can do with our time here.. Its called making the most of it and not taking anything for granted..

For me today starts with positive thoughts and a belief that things are and will, now change for the better..

Going for a walk

Yesterday was a really good day. Not as good as it could have been as Ryan didnt go, I couldnt get him and his girlfriend in the car so next year im hiring a mini bus and taking tents.
We wanted to camp but only the stall holders are allowed so im having a stall next year selling bags and belts, that way we can stay over and make a weekend of it. Paul and Kate are up for camping too. I've just gotta do this, the urge is getting worse to just grab a tent and go now..
The more i look at these festivals the more i like the thought of going to them all.. so thanks to Saturday i think im gonna have a look round and see how many more are going on.. That i can take a tent to !!
Im thinking of going hiking soon with my fella to either Ireland Scotland and the Lake District.. Everytime i see an advert on the TV for them seeing those hills and all that greenery, feels like its calling out to me at the moment.. I want to feel the wind in my hair and walk for England.... Literally, we can just stop off at b & bs along the way when we need a shower and end up where we end up... In the lake sounds appealing too.. Those places look amazing.. saturday there was a group there who played Irish folk music, i didnt know at the time but 2 were Laurens school teachers! They were bloody brilliant, I couldnt help my feet it just made you feel so happy, Happy music.. So ive asked her today so go get me his CD.. I could just see myself joining them with a violin playing away......hehe What a great thing to do..
Yesterday i spent the day cooking.. It didn't start out like that, but the kids and my fella kept going on about bread, so i ended up being slung off my computer and spending the day cooking, they were eating it faster than i could cook! The bread ive been told is the best yet! Not that i can eat the bugger..lol
Im now going to tackle the packing as the orders are printing out as i type, and im grabbing the poor dogs again for an hour and going for another walk..... They will think ive lost the plot with all these walks..

Bookworm

I took an unexpected day off yesterday and really enjoyed it! I did the packing early and made the mistake of reading an intro to a book someone had sent me the link to online......... That was it, for the day..
I was ribbed constantly by my fella as i wasn't working and do you know what? I really didn't give a hoot, it was worth it, so i ignored everyone and read the whole book! I haven't done that for years.. I used to love reading but ended up not having enough time so stopped ...........My fellas face was a picture, he just couldn't help himself and kept calling me lazy, hoping I'd bite and stop reading it.......Nope.. Yesterday i was lazy, i did what i wanted for a change, not what everyone else wanted me to do........All 103 chapters of it...hehe...
Today its the Barford festival.... I'm so looking forward to this.......
I feel strangely refreshed this morning............ Watch out world!

Positive

It was so lovely and hot last night, It felt like i was on a holiday!
The last couple of days im getting more back to normal here, it feels good. The garden is looking my kind of lovely, 3 days on the trot ive come up with a great meal from its offerings.
My fella left early with the kids so ive got the day to myself. I really hope this meeting goes well for him, its a national company and would set him off on a bloody good footing. Its important.
After saying that mum now phoned to see if i wanted some company today, she couldnt have timed it better, id love some....... I have bought paints to redo the table and furnishings in the kitchen..
I need to get past this week healthily.. Its the 5th week since the last fit which is usually the week it starts again.. Fingers crossed it doesn't happen this time around. Im feeling good and want to stay that way.....
I cant wait til it rains today.. Im wearing my shorts and intend standing outside in it later.. When you feel a need to do something then you should.. So mums gonna get a giggle today.

Sunrise

Headaches finally cleared this morning.. Thank god. I thought i was gonna miss the sunshine!
By the way where is it?
Muggins here went out watering the plants last night with one eye closed and all.... They are probably all drowned this morning out there.
The dressings are finally off properly this morning, thanks to a long bath, I can see what im dealing with now, its not too bad, just a bit lumpy. Its not hurting to move at all anymore so i must be getting used to it.. My fella had a look and said it was fine, then reminded me its gotta be cut open again to come back out! Thanks for that! Talk about cheering me up.. I have a secret recipe for scars and quick healing which i know works so will be using that now.. It doesn't hide up the fact you can see the device really clearly inside my chest, but its there to help til they know whats happening with me.... Hopefully nothing more.... I was pretty down, id stopped smoking on top of that and stranger things can happen.... It was def a low point of my life..
Its wine making day here, i cleaned the garden ready and my fellas promised he will move all the bottles from outside on the decking.. Its a mess.. hes turning his shed into a brewery today instead which will be amusing.. that means dads in the shed pissed when he disappears then!
The house is so quiet today, just Brandon and Callum in bed asleep.. Ryan's probably got the biggest smile on the planet this morning waking up on holiday with his bird.....
I'm gonna attempt a few sit ups this morning and am gonna drive myself down the tanning center.. I'm fed up with feeling and looking a mess so need to do something about it now i can move properly..
Its my fellas birthday on the 30th so i need to try and find something nice... I think at the moment all he wants is a good piss up and night away from here so I'm gonna have a look and see what i can come up with.. hes pretty low in himself as hes fat (they are his words not mine) it doesn't make any difference to me as hes still the same inside, but he doesn't see it like that.. Ive got a fucking square box shoved down my cleavage so i don't exactly feel very sexy either........ at least it wont poke into him with a bit of extra meat on him............lol
The BBQ is gonna get cleaned today and subtly I'm gonna just keep cooking chicken and salad for the next month for tea..........
Hes going back to work properly next week with Paul.. Its no good staying here just in case. Hes been doing alternate days up the office but needs to go back now.. I agree with him......

Sunsets

I feel so optimistic today, some days when you wake up, you just feel happy. Todays one of those days..
The suns shining, the birds are singing their heads off and it feels good.
Ive been out in the garden with my tea to see whats changing out there and smiling secretly to myself when i see new life peeking through.
Tonight i was hoping to go to the beach, but plans have been changed, my fella, my eldest son and his girlfriend all want to go to salsa so are taking the car.. he wasnt happy about me driving myself up waxham beach alone in case any thing happens to me when im there...
The last time i went to chant i came home so calm and happy inside, it does really make a difference. I got lost of course trying to find roses place but my fella ended up being a taxi which meant i could also have a drink.. I was lost in the chant that night, i felt like i was floating.. It was magical... So i'll wish my friends a warm summer solstice and hope mother nature brings them an amazing sunset to add to their evening.....xxx

We have started the changes to the site, which have been amusing, ive been changing pictures like a looney to load in bigger sizes but love whats happening to it so far.. Im also working on the other shop as thats next..
Im very reluctant to do photos anymore but my fellas telling me to try them, The fact that il have to sit and clone over a lump doesn't make it appealing but its like my fella says, its not in there for ever...This is only temporary........
Tomorrow im going with David for a couple of days to his sisters place to get it ready for her, my eldest has been there all week helping and cannot see what me sitting indoors is gonna do to help, as long as someones there who knows what to do its all you can do, so my fella said yes and is putting all his meetings into the next 2 days so he can do what he needs to while im away during the day. I can't wait to see what the decorators have done up there, tomorrow im taking some pictures of that quaint kitchen of hers to get some ideas for mine as its time i redecorated... Its to die for with that beautiful little range oven... Hopefully i wont though, or i'll be in the doghouse with my lot..........lol
Right back to work now.. I want to get this fnished today..its coming on a treat..

Fathers day

Fathers day has been amusing in our house today.. My fella got up at 6 to wake the boys for their paper rounds, thats usually my job so it made me laugh that the one day he should have a lie, in he gets up!
Hes really into this home brew lark now so i bought him something extra from us all for putting up with us for another year, a 30 bottle set Shiraz/Merlot red wine kit.. With the 5 demi johns he has outside filled with ginger beer and the rest of it, it should allow a few amusing slurry nights.. Im getting right into my home baking now thanks to river cottage and am getting good at it according to this lot, so ill be in the kitchen doing the food, he can make the booze.. Perfect for nights round the firepit with friends........ Although im not sure the neighbours will agree...
We are trying salsa starting on Tuesday, i can't wait to start getting out again.. Im just gonna have to be careful who i dance with..or stick to bachata..
Im asking Dayle to come up and sort my hair out this week, I had the longest bath and hair wash yesterday which made me feel so much better..But it needs cutting badly now.
I want to go see Bob at the hospital today, he did bring me up and is my dad in every sense of the word where it counts. hes managing to say yes and no now, which is good and although hes still paralysed he is making a slow progress.. Hes managed to keep breathing through 3 strokes up there and a brain hemorrhage so is an inspiration to us all.. Even when you feel theres no hope, you need to keep trying....
The kids bought Steve a bloody stupid drinking hard hat! which hes promised to wear today, he can drink away while he makes some wine........ Its time i started to drink it with him now, even the drs said red wines good for you... otherwise he will be blot toed with all that lot to drink.. My garden is home to a brewery and Mediterranean salad garden which looks and smells lovely... Im like a child out there every morning seeing what i can put with dinner growing....
Ive been doing my own olive oils here with chilli and garlic and all sorts of herbs, the difference it adds to the cooking is briliant.. Ive got orders for the next batch and shit loads of jam orders waiting... I knew i liked growing things and cooking but i didnt realise just how much everyone else likes me doing this.
Its not been nice being shut indoors all the time, but i guess thats the positive i can take with me on this, ive experimented and really found something i like doing, growing stuff and then creating gorgeous meals to use it up with, its that feel good feeling you get seeing everyones faces when they munch away happily, knowing you made it from nothing..... Ive got a greenhouse full of nearly ready cucumbers which bring a smile to my face every morning when i see how big they are getting...........how sad is that! lol

After The Rain

How good is it to see some rain out there, everyone moans but the garden needs it badly, the farmers are depending on this coming. Laying there last night i couldn't sleep, so i just layed there listening to the rain, it was lovely.
I wanted so much to go to the party last night but my fella said no.. He knows its hurting even when i do try to hide it, its bruising from inside out everytime i move, it is gonna take time to adjust to this, im telling my body to accept it but its a pretty big lump for it to ignore, sleeping im fiding most difficult as it burns like mad everytime i turn over, so i was thankful to the rain last night for keeping me company and allowing me some time to think...
Im positive they will sort out my problem, so need to stay focussed now..
Mareks working on my site either this week, ive given him a list of what i want changed and cannot wait to see the look of it, its so dated now, so time that changed.. Everything changes.............
Some changes are not always for the best i accept that, but ive got to now only worry about the things i can change ... Not the things i cannot....
The last couple of months although have knocked me back, have also helped me find that voice i couldnt seem to find when i needed... Things i cannot change i will walk away from, and not loose sleep over. I spent so much time worrying about things i could never do anything about, for what? learning to just worry about just those things i can change... makes sense...
Ill accept whatever comes in the other format and move on..
I did paint my nails last night, for the first time in ages, id been putting it off in case i was rushed back to hospital ( they cant read through polish on the machine) so i simply stopped painting.. just in case.. its madness! Fuck that! Im not living like that anymore......Whatever is meant to happen, will......
I can change today and enjoy every moment of what it brings.. so thats what im doing, even if it means ive been stuck in for a while, ive learnt new things while im in here..which will make this summer an even better experience..
That old rain certainly helped wash some haze away up there last night.. I feel im back on track mentally and want to get myself well, so physically i can do what i want to do again...... Theres so much out there i intend to do yet...
Everything does always look better after the rain, all bright and glistening , filled with fresh hope and wonder.. Or is it my eyes are just seeing clearer for the good old downpour...
Perhaps thats what we all need sometimes, a night of listening to mother natures soothing sounds , washing away old thoughts and feelings, so we can look forward again to see the world for what it could be..... rather than what has been.......

Limited

Yesterday was a good day. My fella had shit loads to do he worked all day and all night bless.. he must be knackered today.. Hes got 4 important meetings today so im spending the day alone. Im nervous but have to do this.. for his sake as well as my own...
I used to love my days on my own, i could work paint and do all those bits i enjoy doing,I got over the first lot of problems and went back to life as normal, but i must admit the last lot has left me nervous to do that yet.
I was hoping my mum would come up for an hour or so but no such luck.. shes out shopping looking for furniture for her new flat she hasnt got yet, everyones quick to say "let me know if you need anything", but when you do need someone theres never noone there... lol..
I should have known better for hoping.
This implant thingy isnt nice, the wound is healing nicely but its so fucking big in there it sticks into something inside everytime i move.. bending forward manages to hurt the most as it smacks into my collar bone, I hope this isnt how its gonna feel and hope its only til it heals properly.
I'd love to get back dancing and riding so i can feel more positive, sitting in this place is doing my head in... Im getting through editing today so it doesnt keep looking at me unfinished..but my hearts not in it today if im honest.. Its so lovely out there i keep thinking about the beach and going for a walk, but ive promised ill not do anything stupid..
I feel like ive been dragged through a hedge backwards, my hair is making me feel like shit, I need to sort myself out so i feel better but am not allowed a bath til tomorrow... its the first time in years ive not painted my nails and kept myself pruned and it does make you feel like crap.. I need to find that ' you'll soon sort yourself out girl mindframe.....and think positive
Im going to salsa tomorrow so my fella can get back dancing, its agua on friday and one of the best party nights going, which is gonna be a shit, how im supposed to sit there all night and not dance is beyond me.
It says you can go back to normal activities around 10 days after the op as soon as swelling goes down and stiches are clean..but as the drs said i needed more meat on me to cushion round the implant so im starting to believe that salsa as i know it, may not happen for a while yet..im seeing the dr again tomorrow so im gonna speak to him and see if theres anything i can do to help myself more..
Half of me wishes id have one of these siezures quickly so this thing can do its job and they can take it out, the other half hopes i never have to experience one again.... It could be a day or a year waiting like this so im gonna have to get used to it being in there.. it can stay in for 18 months so i need to shut up moaning.. its there to help and thats how i have to look on it..
Id love to just get in the car and go for a drive today....... i really miss those simple things.......
I get enough warning when these start that i can get myself on a floor or stop what im doing so im hoping the dr says i can get back to some kind of life again.. Its my fella ive felt sorry for, hes not ill and has to fucking sit here all the time.. I love my home but i dont love being shut in it !

Torn

Sometimes as much as i dont want to, i cant seem to help myself.. its been like that this morning..
Im just back from going with my fella to see the dr, this time its for him.
Since ive been ill hes not feeling so good in himself, i know its worrying about me and the fact hes trying to hold everything together here, i feel so reponsible for everything falliing to bits, im not myself at all at the moment.
I honestly think he would be better off away from here now.. one of us feeling like this is bad enough, two just isnt fair..
The kids are getting older, less dependant and i know if i was left alone id have to sort this out. At the moment im an emotional mess with a head full of questions i have no answers for today.
My chest is fucking sore, yesterday was such a drainer.. I thought they would cover me up a bit but instead i watched them do everything as its gone in my upper chest.. emotionally i wasnt prepared for how it made me feel inside and how scared i was on that table.. I counted everyone of those 30 stictches go in, hoping on each one that would be the last ...thinking to myself, whats gone in has to come out ......
The nurses kept asking why i was on my own, i was the only person in there who didnt take someone with them. but ive got to the point where i dont want anyone there to see that shit happen, it affects them just as much, its probably better if they do ignore this.. I dont want to make him ill and im simply not myself at the moment............

Ready

What a giggle today has been. Mandy and Deon have been up and we have been having such a giggle. I've had my pre op this morning and am cooking meals ready for this lot, my sisters taking me into hospital as my fellas working but he will be able to pick me up if they let me home..
My fellas sense of humour is on top form, even Mandy says she would have thumped him by now, but if thats what gets him through this, ill happily take the hype..... he looks a lot worse than i do at the moment, im concerned hes not taking this as well i hes making out.. Hes got a huge stye come up on his eye, and looks like hes got the worlds weight on his shoulders... Hopefully once this ops done tomorrow we can both have some time to ourselves again.. its not good to be together 24/7 like this... hes like a caged animal poor sod..
We have a party to go to this sat at our friends in sutton and im aiming to go although he doesnt think we are.. I know i cant dance or drink yet, but theres no reason my fella can't, After 10 days i will be able to go back to leading a more normal life again ... im going back to riding and salsa and making the most of every minute i can......
I had my heart scanned yesterday which was a relief.. (yes they did find one!)
Its as strong as hell and perfect according to the dr, theres no damage whatsoever with that.. This is an electrical problem by the looks of it, somethings telling the heart to stop..
Roll on tomorrow.. hopefully this will give everyone some answers and relief then once its in....

Calm

Yesterday went well, we were up the hospital nearly all afternoon but it was worth it, I had emailed this lady specialist a couple of weeks back and she insited i would be seeing her and not her understudy so i didnt mind waiting. She was worth the wait and really lovely. She wasnt amused the things she asked the hospital to do hadn't been carried out while i was in there previously and promised she will be working with me until im sorted out. I was given the date of the 12th July for this operation but she said it was too long to wait after the amounts of fits i have had now, she filled in forms and told me she wants it done this week, so i am to sit by the phone and wait for a call... Shes not messing about thats for sure. I havent got much faith in the NHS left after the last couple of months but she was really good and helped restore some.
The hospital now phoned and my operations at 12 this Thursday.. I have been told that my sister cannot come with me now as i may need a general anesthetic and not a local.. not going to know apparently til the surgeon looks at me and knows where hes putting this device in ? I hope its a local.. I want to be able to come home.. not good at staying in that place...
Its taken 6 weeks to see this specialist but shes been on the ball today and doing everything she said she would do..
I did half the dress photos at nannies this weekend so im gonna see if my fella will do the other half tomorrow afternoon now, i know he will moan and say no but.. these need to be done as the whole section needs sorting out and redoing, the ones we did i am really pleased with and dont want to do half a job, I can just sit then and sort out that section while i heal from Thursdays op without worrying i have stock there not photoed.. Im not sure whats going to happen once this is done, its a case of wait for the next seizure and then they will know what to do with me.. so i need to prepare if i cannot do photos anymore or need further surgery, i will have time then to get my model in.. ive already got one lined up ready, whos happy to take over..... I'll then be the photographer until Ryans ready, hes doing a photography course at college and cannot wait to get behind the camera taking photos of pretty models... lol
I may do some cooking this afternoon and see if i can get some meals ready here..

Learn

Decided to play dot to dot last night with the ambulance guys, another morning of waking up covered in heart monitor stickies.. they asked me to leave them on overnight in case i needed any more call outs.. I hate this.
Im torn between the devil and the deep blue sea. My fella said as soon as i started to feel unwell i have to let him know, the packing took me all afternoon, i was really tired by the end of it and really grouchy, one of the parcels wasnt paid by paypal and a couple of important letters were in with my book so i couldnt send the kids with the parcels as normal, there were too many for them to carry, so my fella said we would go together, i just wanted to sit down by then, and couldnt.. As soon as we returned and pulled up in the drive i started to feel unwell, the blood just drained from my arms and head again like emptying a swimming pool quickly, I just sat there shuddering with cold.. I came in layed on the sofa and hoped it would go away, all the way through my fella kept asking me should he call an ambulance, he was really not helping me relax, he wants them to be here when i get these so we get ecg readings, but i dont know if its gonna be a full blown one or like last nights milder form without the chest pain.. you get about 10 seconds of that pain starting and and being unciousous thats all.. its so hard for him i know, but i have to keep calm not panic, I really dont know if its gonna escalate or not til it happens.. Thankfully last nights episode did leave.. The ambulance crew were bloody brilliant and sat here with me til he finished his shift, they wanted to take me in but said the same things likely to happen again, ill be sent home until i see this specialist on monday. The ambulance crew are better than the hospital guys by far.. I got upset which i dont normally do with these but they really helped to calm me down and reassure that he was here with me whatever .. He also showed my fella not to panic or stress me out by keep asking me whats happening... That could indeed make these worse and escalate them .. I keep asking him to just sit with me and hold my hand, im trying to stay calm and find a nice place in my head, if you sit there waiting and reporting back every second of what it feels like, surely thats concentrating on the wrong parts... Im sitting in my woods surrounded by blue bells in my head, feeling the breeze on my face.......... and thats how i need to think..

Counting

6 today to go! I don't normally look forward to seeing a specialist but im hoping this lady on monday will answer a few questions we both have, It will also give my fella some peace of mind when this implant is in as he wants to know what he does when i do go out cold is right.. I look on it as it must be or i wouldnt be here writing a blog...
We took the kids to the charity day yesterday, well the afternoon part anyway, they loved it, we didnt do the whole day as it would have been too much.
I didnt do any classes but at least my fella could, that made me feel much happier, as i felt i wasnt stopping everything then for everyone else.. Lauren made a friend and the boys even did tbe regaetton so a good day had by all. I had a few dances when we went back last night for the evening party but kept it sensible.. Its amazing so many men asked me, i didnt think anyone would once they knew id had another seizure but they are good buddies and did.. That made me feel not quite as much the fuck up as i feel at the moment..The stupid part is everyone keeps saying how well i look.. its sods law..
Today im catching up on the packing as i didnt post out Friday and wished i had of done now.. My little helpers are Lauren and Callum, reluctantly by the sounds of it .. whats the betting they get wrong before the first parcel is packed!
They think as soon as they do one job that, that is it for the day, its taken some serious work for my fella to get it into their brains that they need to all do their share everyday.. Making their own bed doesnt count for taking the pressure off mum, although i think in their eyes it does...lol
I noticed a few smiles coming from the girls at that point...lol

Close

Its been a really nice weekend. We had friends round last night for dinner and my fella cooked, I got to do the sweets and thoroughly enjoyed the night. I feel so close to my fella at the moment its bloody lovely.. This has definitely made us both think and realise how right we have got some things,... Hes told me in no uncertain terms i'm not going anywhere.. Ive already been warned with the car battery charger if i don't behave.
I never thought he would take this very well and although its incredibly hard for him hes been such a gem, no matter where i am, hes always close just keeping an eye out..
So far ive had a clear week, i need to try and better last months score of 5 weeks and somehow work out whats causing these. I cant stop living because im frightened somethings gonna happen, I know its highly likely but i also believe that no matter what, as long as i have the will to live, my fella will get me round... he wont give up he loves me too much.. So i want to try and live as normally as we can here..

This afternoon/evening we are heading for Anglia square and to the cinema. I promised the kids id take them to see Pirates of the Caribbean 4 two weeks ago and the poor buggers didn't get there.. Hopefully today will allow me to change that.
Its the big bank holiday charity day tomorrow at Acle. we are going!We are taking the kids with us during the day and going back tomorrow night with our friends- if im well enough.. Im really looking forward to this and thinking positively again now thankfully.. It does take time to heal from these and find that warmth again so you can wake up smiling, looking forward to the day ahead..

hopeful

I've been deep in thought today.. I just want my life back so much..
Simple things like watering the plants feel impossible today, im so tired physically, mentally im shut in a body thats not capable of anything other than wanting to sleep... come on energy where are you?
The kids are brilliant and keep saying we will get through this, my fellas being really good but must be doing his nut inside, he doesnt like it if i got a headache let alone all this shit. Hes hiding it well..
The heart specialist phoned back this afternoon they are implanting the micro chip into my chest on the 6th June to tape my heart ..This will stay in until they find out whats stopping it..
Ive also got to see a neurologist to find out if theres any connection in the bad heads i was getting and these attacks now..
Its stupid to some people but waiting for it to come everyday will kill me inside, i want to be as normal as i can be and not be wrapped up in cotton wool in between. It wont stop it happening, but it will just stop me from living and thats not what life is about..
David thinks i will start to feel a bit better tomorrow, im praying hes right.. to be fair he usually is.. He is sitting with me tomorrow afternoon while my fella goes to this meeting he keeps putting off..
I heard them talking this afternoon, they thought i was alseep, David and my fella aren't telling me everything that happened when i was unconcious, i heard that much...
Hopefully the specialist's will do something now between then and sort me out..

Will to live

Its the first morning ive got up on my own for a couple of days, its my favourite time of the day Its so peaceful.
My fella spent most of the day on the phone yesterday, he was brilliant. He managed to get me another dr as mine is always on maternity leave, ive got the one i wanted who is now in the process of what he calls sorting out the neglecting hospital. We have complained to hospital ourselves and apparently a lady is also working to sort out the missing loopholes that i seemed to have fell through.
As my drs not been in surgery for 5 months ive been seeing locums, a different one everytime, none of these guys had the sense to push the hospital for appointments for me, it was simply left of course. if you dont need antibiotics they dont seem to do much..
Ive gone for my sisters dr who i knows has looked after her really well, he knows whats been happening with the family already and is happy to take me on.. Im so relieved... I dont know whats worse knowing nothing is being done to stop these or waiting for the next.
I sent for paperwork last week which has now arrived, so will be spending a few days filling in what looks like books with my fella. I can get help now to take away the stress of paying next months rent, normally id say no and carry on working, this time im saying yes and taking some time off.... The trouble is here that the bills still come, my fellas income still isnt enough and i have to work to keep them paid! Noone works because they want to.. I certainly dont.. A life of poodling about in the garden sounds bliss to me but with 4 dependants who are now all in high school and growing like mad, needs supporting.. They are going to put me on sickness benefit as my only income at the moment is my work.. no work, no food simple as that..
My fella managed to speak to the heart specialist yesterday in cardiology.. she was totally unaware of course that her wishes were not carried out while i was in there, so has rushed through an appointment for me, its not brilliant as its not until the 6th June and ive got to get through until then, but we are on as urgent and first in if theres any cancellations.. she only works 2 days a week and theres a bank holiday of course!........ lucky her i say,  she doesnt have 4 kids and a house to keep obviously then...
My fella wont let me out now even to the shop, it does knock the stuffing out of your confidence so i understand how he feels, he keeps going on about the night he went out on his bender and that he thought i was ok now.. we both did.. Im not ok so.. no salsa, no riding and no work... Its such a shame as im loving my dancing but i wouldnt wish that on the class if i did go down so will have to stay away until i know im not going to hit the deck..I was tired on Saturday we had been round our friends Friday night which was really chilled out and nice and i didnt drink, but Saturday morning my fella wanted to go carbooting and to a farmers market and it was really hot.. It was a busy week last week and i dont think my body coped well with it all by the time it got to saturday night.. I fell asleep at tea time to then wake with a terrible headache.. I havent had one of those since i quit smoking so i should have known something wasnt right..
My grandparents are really upset, nanny wont come to see me but rings everday at least twice, mum says shes worrying herself silly.. The ironic part is i felt so well the last month so what the fuck is causing this problem i dont know? They are also looking into my brain now as well as my heart and going to check for what i imagine as tumours, i did have a really severe headache on Saturday before i had the fit.., They were talking about implanting a micro chip to constantly monitor my heartbeat until they can catch one on tape.. Another bloody implant on my chest then.............Great!
Not a pleasant thought knowing im gonna experience it again but i know thats its highly likely now.Everytime it comes I can feel the life draining out of me  im telling myself to 'keep breathing' as i go.. The only good part is you dont know or feel anything else after that, just relief when you wake up knowing im not dead yet ......
My fella wont go to work anymore, hes here with me now until this is sorted out..

Stopped

Just back from another night in A&E.....
I had another seizure last night, the worst one yet according to my fella.
 He had to do CPR on me, to get the heart working again., it wasnt going to restart... When i did come round i didnt know who anyone was..
The hospital is useless and the dr admitted to us last night that unless i have one of these seizures monday-friday 9-5 they cannot do anything to stop them, as everythings closed up there at weekends and evenings.. We have been told from last nights Dr to phone up cardio tomorrow and scream,..
My arms are bandaged up from endless attempts to get canulas in, my fellas worried sick im gonna die so cannot leave me on my own.. They have told him to stay with me at all times now.. Poor sod.. how much presure is that to put on him.. Last nights episode scared the crap out of him. I feel like an elephants sat on my chest today..
My kids watched me on that bathroom floor being pumped back to life by my fella and the ambulance crew, how can the hospital be so useless.. Its not the staff that are there, they have too much to do.. its the wankers that can sort this out but they are too busy with their sports cars at weekends and dont work.. These guys get all the NHS money and do fuck all themselves anymore.
Reminder to oneself Jo.. Please try and not have any more seizures at weekends....
Ive got orders coming in! so my fellas gonna have to do my work this week on top of look after me..
Hes now scanning the net in the hope we can find some answers to this..
My blood pressure was the best its been in years so i know the juicing and drinking loads has really helped, i felt fine all day and night yesterday until i went to bed, then it came...
Another week back to living on edge not knowing if more are coming.. I had just started to get some confidence back then it starts again....

warmth

Last night was really good.. I have never seen my fella dance so well, he was bloody amazing.
Its definately been a busy dancing week but helped when you're trying to stay positive.
We did say we were only going to do every other night which has gone out of the window, we have only stayed in one night so far, but we have now got a posh ball to go to Saturday night ontop..Its a guy i did my firewalk with and his birthday party, its at a really posh place so im pannicking as usual.. They even have a F1 car there for the guests to have a go at!! I like the guy as he was my walk buddy but hes part of my fellas business community so im really pleased he asked, I didnt know who he was from adam, when i did the walk,  but in my fellas world hes the alan sugar.. That really made me giggle as i remembered the guy had flip flops on the last time i saw him..  He must be the long haired hippy version then..lol
Free vodka and food all night was enough for me to say yes.. Ive asked my fella to pick my dress so i dont even have to worry about that.. Word of the week will be 'whatever'... Being up that hospital so much has changed my outlook on a lot of things now....
Im blackmailing the kids this week with dvds, take aways and pocket money as i feel bad ive been out so much, but im feeling good this week and intend making the most of every minute im feeling like this..
Tonight we are round our friends for a meal and overnighter, i have no idea if these guys can cook but am looking forward to finding out.. All i know is i like them as people so thats a really good start..Im not gonna worry about something that wont happen unless i want it to.. Im quite capable of saying no... or yes for that matter, its my choice..
Sunday ive promised the kids i will take them to see the new pirates of the caribean film so as long as i rest up today its gonna be a good weekend. I have a whole day to relax, which sounds amazing to me.. I'm posting out monday and saying fuck it today to work.. the sun is shining so why not! ill put it on a special and noone will know any different, except me tonight when ive had a day off....blisssssss
 We have made so many friends at Acle and lingwood its really lovely to feel so much energy and fun ..
It is true about feeling alive inside.. when i let the grief and stress get to me it feels like im being dragged down physically as well as mentally, this week even with all the grief and sorrow im managing to feel the warmth again..

Changes

Another week started and im still here! Thats a pretty amusing thought to have but very true!
My fella took me out yesterday near Stalham to a car boot which i must say, i really enjoyed. We started with breakfast out in a little cafe and just stayed out all day doing all sorts or random stuff, it was a really good day. I went up to see Bob in the afternoon and came back to watch my sorts of dvds and just chilled out.. I had to smile as he would never watch chick films like Burlesque but did this time, without moaning..lol
Im panicking today looking at this place but not allowed to do it.. i've promised... and as i woke up feeling like im pissed again im keeping that promise..Riding is a no no sadly..
I've been keeping a diary of these episodes and they are coming exactly the same time as last months were, to the day, one week after my period finishes...I get a week where i cannot stand up without looking like a piss head.
Im hoping this week my body will go back to some kind of normality.. I have things planned starting tonight at bachata class.. its not high energy dancing its more like slow and sexy.. im really looking forward to it.
We had invites to go out every night this week which i was a bit worried about.. so have agreed to do every other night all being well instead, hes worrying as he says i look ill and has refused to leave me to go to work but ive lied today and told him i feel much better.. He wouldn't have gone over wise and cannot sit here all day just incase i collapse.. If i go i'll go regardless, ill just make sure i get down on the floor quick!
Hes working on the kids now and making them do all the housework when they get home from school, Ryan always has helped its the other 3 that dont...I went to bed early and could hear him calling them down one by one last night to talk to them..
My drs signed me off work now saying im unfit to work so hes trying to sort out what to do from here.. My big sisters on call to do the packing from next week if i need her..
He cried Saturday saying he doesnt want me to die and telling me ive got to fight this...... I am fighting..
I got myself one of those E cigarettes that i carry around with me.. its not clinically classed as smoking but it will give me nicotine .. Until i know whats causing these its advisable.....My fella took the piss at first until these fits got worse, now hes agreeing with it......as a security precaution..
I dont think it was the stopping smoking, as i had the pain a few months back when i was still smoking.. I think too many years fighting and living with stress levels most people wouldn't understand, hurt more than i thought... Im worn out and need to take some time off ..hopefully without surgery involved but i dont know that much yet, ill do what i have to or i wont be here to argue with them..
Like Sasha said, time for a lifestyle change Jo.......... Yep, my fellas adamant and will be changing with me on this though.. Work aint gonna come first anymore, its had enough off us... he wouldnt go at all last week and just said fuck work when anyone phoned.. but it will take a few weeks to sort out all the paperwork needed here and get some help, the stress hes carrying at the moment is visable... so im trying to help him by sending him out.... I have a neighbour up the road who cannot run! on call if i need help i just have to ring, its like something off faulty towers... bit like the NHS service really.. 2 weeks waiting to see why your heart stops beating and you have brain seizures...... good job its not life threatening then..........lol

Lifestyle changed are needed now... so we are gonna do just that and change everything......